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Tell Congress: Put Brain Aneurysm Awareness On The Map

You Can Help Declare September as National Brain Aneurysm Awareness Month

Shirley Dudek Demmer was a loving wife and the proud mother of two sons and a daughter. Just 54 years old, she was focused on planning for the future with her husband and children. She tirelessly dedicated her life to the family she cherished, the home that she treasured, and the community that she loved. This all changed on November 12, 2007.

In the midst of preparing dinner one night, Shirley collapsed suddenly. Her husband called an ambulance and she was rushed to a nearby hospital where doctors broke the news to her stunned family that a brain aneurysm rupture had caused catastrophic damage. Surgeons tried to repair the damage, but were unable to save her.

Shirley's family was shocked by her sudden death that came without warning. Shirley exercised regularly and was in seemingly perfect health. Her husband said she had had every medical test that was recommended and kept meticulous notes of the results.

Shirley was a person of extreme warmth and caring. Throughout her life, she was dedicated to family, faith and community. Her philanthropic efforts, particularly in the area of women's rights and violence against women, had a remarkable effect on everyone whose lives she touched. Her three children were never able to say goodbye. Her husband, her family and her friends were left trying to make sense of their loss. They lost a mother, a wife, a good friend, and an important member of her town’s community.

Every year over 30,000 families in the U.S. experience the unspeakable tragedy caused by a ruptured brain aneurysm.  About 40% of those experiencing a ruptured brain aneurysm will die. Those that survive often face significant challenges, greatly impacting their lives and the lives of their families.
 
Families like Shirley's are asking you for your support by sending a message to your representatives in Congress by signing this petition. 

1 in 50 people will develop a brain aneurysm. If a brain aneurysm is diagnosed early with proper screening, it can be treated before it ruptures.  Lives can be saved if people know the risks, the signs, and when to get help.

It is critical that you help raise awareness of brain aneurysms, including methods of early detection and treatment.

Your support of H. Res. 667 introduced by Representative Tiberi and Representative Neal would have a tremendous impact and would be much appreciated by those whose lives have been impacted by brain aneurysms, as well as a big thank you to the Senate for passing resolution S. Res. 438, sponsored by Senator Markey and Senator Ayotte.

The Brain Aneurysm Foundation asks you to please sign below to support H. Res. 667 and to thank your Senators for passing S. Res. 438 to make September National Brain Aneurysm Awareness Month. 

 

Post Public Comments

Public Comments (14,417)
Sep 21st, 2018
Jenny R. from Sandusky, OH signed.
Sep 13th, 2018
Susan M. from Knoxville, MD writes:
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I was diagnosed with a brain aneurysm in May 2017 which was quite large and luckily it had not ruptured. I had a craniotomy on 6/12/17 at University of Maryland and my surgeon told me that I wouldn't have lived until July if it wasn't found. I had no symptoms other than experiencing weird smells (later to be discovered as seizures) and a CT scan was ordered and the aneurysm was found. I worked out 5 days a week, ran 5k's and was in great health. I'm so fortunate to be alive today but things are definitely different! I get terrible headaches from pressure changes in the weather and have slight weakness in my left hand but I'm still able to work out and have been able to run two 5k's this year.
Aug 29th, 2018
Melissa A. from Bridgeport, CT writes:
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My niece had one in 2016, my nephew's wife had one in 2017, and on August 23 of 2018, my cousin's wife passed away from one in the morning, leaving 2 beautiful little girls behind, and that same evening, I had mine. This is more than just a Headache, this is our life.. please fund research..
Aug 28th, 2018
Brian R. from Belpre, OH writes:
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Everybody has the potential to be a victim!!!!
Aug 28th, 2018
Savannah S. from Webster, FL signed.
Aug 28th, 2018
ShaCara H. from Saint Cloud, FL signed.
Aug 28th, 2018
Someone from Axton, VA signed.
Aug 28th, 2018
Tessela S. from Saint Cloud, FL writes:
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My mother died at 53 because of a brain aneurysm. She took herself to the hospital knowing something was wrong and was treated for a simple migraine and her aneurysm ruptured hours later forcing brain surgery and being in the hospital 2 weeks then to die right there from it. People NEED to know about aneurysms!! They are not talked about enough!! We need awareness!
Aug 27th, 2018
Someone from Webster, FL signed.
Aug 27th, 2018
madilene h. from Saint Cloud, FL writes:
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The Honorable Darren Soto U.S. House of Representatives [Room Number] [Rayburn, Longworth, or Cannon] House Office Building Washington, DC 20515 Dear Representative Soto: As your constituent, I am writing today to strongly encourage you to cosponsor H.R. 1648, the Ellie Helton, Lisa Colagrossi, Teresa Anne Lawrence, and Jennifer Sedney Focused Research Act, also known as “Ellie’s Law.” This bipartisan bill provides funding for further comprehensive research at the National Institute of Neurological Disorders and Stroke on how to most effectively manage and treat unruptured intracranial aneurysms. My mother, at the young age of 53 was robbed of her life with her 3 daughters and 10 grandchildren due to an un diagnosed aneurysm,my mother took herself to the hospital that evening, she was given a shot for pain and put in a dark room to sleep it off, never once a test ran ,a scan, nothing..written off as a migraine.NO AWARENESS! NO KNOWLEDGE! NO HOPE FOR MY MOM! My mother was part of that 40%.My mother suffered form migraines her whole life, my mother had an undetected brain aneurysm rupture.She was alone, likely scared.Now i am alone, my kids have no grandmother...There is an outstanding amount of people effected by such an unspoken pain. I never in my 23 years of life had heard of an aneurysm until it was smack in my face stealing my mother from my life.This needs awareness, this need attentions, doctors more aware, men, women and people of all walks of life aware of something so life changing. Dont become a part of that 40%, lets not let this number rise! lets take action.Ellies law has my vote! i fear for myself and my children i live in fear this will take someone else i love, there needs more research, more attention, more cures, more life saving options..look at the fatal rate.....40% that number is entirely to high for me as a mother of 4.With chances being greater for me and my children.