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Support Brain Aneurysm Research Funding

Cosponsor H.R. 1648

The Ellie Helton, Lisa Colagrossi, Teresa Anne Lawrence, and Jennifer Sedney Focused Research Act (Ellie’s Law)

While brain aneurysms are surprisingly common, federal funding for research in this area is almost non-existent. An estimated 6 million people in the United States have an unruptured brain aneurysm, and each year an estimated 30,000 people in the United States will suffer a rupture. Ruptured brain aneurysms are fatal in 40% of the cases, with 66% of survivors suffering permanent neurological damage. The combined overall lost wages of survivors of ruptured brain aneurysms and their caretakers are approximately $138,000,000 per year. Despite these startling statistics, the federal government spends only about $5 million per year on brain aneurysm research, or 83 cents per American afflicted with the disease each year.

Ellie’s Law aims to reduce this gap, by authorizing an additional $5 million each fiscal year, for five years, to the National Institute of Neurological Disorders and Stroke.

 

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Public Comments (75)
Oct 12th, 2018
Rebecca B. from Wichita, KS writes:
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Please support this. My mother passed away because of this. Its becoming more common. Please support this cause.
Oct 3rd, 2018
Christine R. from Kissimmee, FL writes:
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Early detection of Brain aneurysm can save lives. To know that you have a brain aneurysm or to know what early signs are will keep people alive. I was 15 years old and in a car accident with a brain injury and that is the only way I knew that I had a brain aneurysm. If I didn’t have this brain injury then I probably wouldn’t be trying to have others be aware. That is why it is so important to me.
Oct 1st, 2018
Someone from Saint Louis, MO signed.
Sep 12th, 2018
Cordie W. from Steedman, MO signed.
Sep 11th, 2018
Someone from Warminster, PA writes:
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As an aneurysm survivor, I can attest to the importance of increased funding for research and potential prevention of this silent killer. I am fortunate, but others aren't and this can be prevented.
Sep 8th, 2018
Someone from Boca Raton, FL writes:
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Last year our dear friends were faced with news that their son has a aneurysm later another aneurysm and stroke. The parents brought him home with them. They can not leave him nor can he work. Our system is broken and this man can’t receive disability. He does not have short term memory. Pray tell me how is he suppose to live. We have people stealing from the system. I see people with food stamps driving very expensive cars. They also sell food stamps for money to buy drugs etc. Here we have a man and family that could certainly use help. It makes no sense why he can’t draw disability. I know this family very well that live in Boyton Beach, Fl. I have this man on our prayer list at church. My heart goes out to this man. How can our system think he can work with short term memory and all his health issues. I would be asham as the system not reach out to these humans. It is not human treating them this way. My prayers...please HELP
Sep 8th, 2018
Mindy P. from Grayson, KY signed.
Sep 8th, 2018
Sandra T. from Grayson, KY writes:
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My family has been devastated by this disease!! More funding is needed to find a better form of detection
Sep 8th, 2018
Someone from Boynton Beach, FL writes:
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My 46yr old son suffered a double brain aneurysm followed by a stroke, last August. It's a miracle that he survived, his chances were so slim he had received his last rites! He has two coils & a clip. He still requires 24/7 care due to acute short term memory loss, has left peripheral vision loss due to the sacrifice of a vessel during surgery, some central vision loss, he suffers from depression & ptsd. His brain is now like a foriegn object to him. My husband and I brought him to live with us in Florida after his 3 months of hospitalization. We are his full time caregivers. It is very difficult to find the appropriate resources to help him or us as caretakers. He was denied SSDI, so we are now dealing with an attorney. He lost everything he had worked for. He also developed a severe case of shingles and viral meningitis earlier this year. We are doing our best with whatever resources we have found locally, but there needs to be more awareness even in the medical community.
Sep 5th, 2018
Someone from Bronx, NY signed.