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Support Brain Aneurysm Research Funding

Cosponsor H.R. 1648

The Ellie Helton, Lisa Colagrossi, Teresa Anne Lawrence, and Jennifer Sedney Focused Research Act (Ellie’s Law)

While brain aneurysms are surprisingly common, federal funding for research in this area is almost non-existent. An estimated 6 million people in the United States have an unruptured brain aneurysm, and each year an estimated 30,000 people in the United States will suffer a rupture. Ruptured brain aneurysms are fatal in 40% of the cases, with 66% of survivors suffering permanent neurological damage. The combined overall lost wages of survivors of ruptured brain aneurysms and their caretakers are approximately $138,000,000 per year. Despite these startling statistics, the federal government spends only about $5 million per year on brain aneurysm research, or 83 cents per American afflicted with the disease each year.

Ellie’s Law aims to reduce this gap, by authorizing an additional $5 million each fiscal year, for five years, to the National Institute of Neurological Disorders and Stroke.

 

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Public Comments (81)
1 day ago
Skye D. from Baldwinsville, NY writes:
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In March 2011, my brother Jeromie Davis lost his life at the age of 27 due to a brain aneurysm. He left behind his high school sweetheart, a week old son, and 5 sisters. With more funding I’m positive my brother would be here today. Every 18 minutes a brain aneurysm ruptures- change this statistic.
Dec 9th, 2018
Someone from Toledo, OH writes:
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As an individual who has had two Gamma Knife procedures to treat an arteriovenous malformation, I feel that it is crucial to have research done for this condition.
Dec 5th, 2018
Christina L. from Stafford Springs, CT writes:
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I support federal funding for the research and study of brain aneurysms. My younger brother suffered a brain aneurysm rupture MAY 2018, 2 months before his 25th birthday. With no prior signs or warnings - he was a healthy strong young man, with a college degree and strong future. We are very lucky the doctors were able to save his life with "coiling" at Hartford Hospital, CT. He suffers daily with headaches / head pain, and short term memory issues. Despite the pain and relearning of tasks that once seemed routine to him - he is staying positive. He proposed to his girlfriend last month (6 months after the rupture) and moving forward as much as possible. WE NEED MORE RESEARCH and FUNDING for this silent killer - please SUPPORT BRAIN ANEURYSM RESEARCH FUNDING COSPONSOR H.R. 1648 (ELLIE’S LAW)
Nov 12th, 2018
Allen C. from Port Orange, FL writes:
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My name is Allen Contreras and February 15, 2017 I suffered a brain aneurysm which in return I had to have two brain surgery's. The day after my third oldest daughter's birthday was when it happened. They had to transport me to a different hospital so that I could have the best happy I could receive. Following the second surgery I had a hemorrhagic stroke behind my right eye which made me lose the hearing in my rate ear. I am a husband, a father to four children, and a grandpa to one grand child. I have served in the United States Marine Corp and I would not have changed it for the world. I have applied for disability and I am waiting to see the SSI judge for a ruling. I am unable to work since the surgeries and it has put a toll on my family and children... Any help would be very thankful
Nov 11th, 2018
Annie D. from Sun City, CA signed.
Oct 27th, 2018
Tamika J. from Philadelphia, PA writes:
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My sister Carla Felice died suddenly on Saturday September 25th. Her death prompted me to get checked but I was directed not to get an MRI after a neuro field test. But after a back injury took me back to my doctor she insisted along with attending doc that I get one. The appealed to insurance to fund testing. 2 wks later I was diagnosed with a brain aneurysm. Its early for me but sadly late for my sister. Leaving 6 kids and going on 3 kids behind we now know the reality of this hidden danger in our family. Give other families a fighting chance. FUND RESEARCH!
Oct 12th, 2018
Rebecca B. from Wichita, KS writes:
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Please support this. My mother passed away because of this. Its becoming more common. Please support this cause.
Oct 3rd, 2018
Christine R. from Kissimmee, FL writes:
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Early detection of Brain aneurysm can save lives. To know that you have a brain aneurysm or to know what early signs are will keep people alive. I was 15 years old and in a car accident with a brain injury and that is the only way I knew that I had a brain aneurysm. If I didn’t have this brain injury then I probably wouldn’t be trying to have others be aware. That is why it is so important to me.
Oct 1st, 2018
Someone from Saint Louis, MO signed.
Sep 12th, 2018
Cordie W. from Steedman, MO signed.