Share:

Support Brain Aneurysm Research Funding

Cosponsor H.R. 1648

The Ellie Helton, Lisa Colagrossi, Teresa Anne Lawrence, and Jennifer Sedney Focused Research Act (Ellie’s Law)

While brain aneurysms are surprisingly common, federal funding for research in this area is almost non-existent. An estimated 6 million people in the United States have an unruptured brain aneurysm, and each year an estimated 30,000 people in the United States will suffer a rupture. Ruptured brain aneurysms are fatal in 40% of the cases, with 66% of survivors suffering permanent neurological damage. The combined overall lost wages of survivors of ruptured brain aneurysms and their caretakers are approximately $138,000,000 per year. Despite these startling statistics, the federal government spends only about $5 million per year on brain aneurysm research, or 83 cents per American afflicted with the disease each year.

Ellie’s Law aims to reduce this gap, by authorizing an additional $5 million each fiscal year, for five years, to the National Institute of Neurological Disorders and Stroke.

 

Post Public Comments

Public Comments (49)
Jul 13th, 2018
Gloria M. from Downers Grove, IL writes:
Quotation mark icon
We need your support!
Jul 5th, 2018
Danielle R. from Brunswick, OH writes:
Quotation mark icon
I am a survivor I am 27 years old I almost died from this I hope you guys push for more health test for this so someone else won't half to live the same nightmare I had to go through
Jul 5th, 2018
Danielle R. from Brunswick, OH signed.
Jun 26th, 2018
Ruth Ann W. from Grayson, KY signed.
Jun 11th, 2018
Someone from Sun Valley, CA writes:
Quotation mark icon
I am a survivor of brain aneurysm. At the age of 11 this happened to me. Fortunately I no longer have long term effects, but this is just myself. There are more negative cases than that of myself and this is why I would like for more funds to go to doctors to research this matter because medicine is short when talking about this neurological defect.
Jun 6th, 2018
Melanie S. from Canistota, SD writes:
Quotation mark icon
I just lost my 66 year mother to a ruptured brain aneurysm in the brain stem. She had a slow bleed 8 years ago and they were able to put coils in and she made it through. I thank god every day that I got another 8 years with her. Another aneurysm started to form about a year ago and they said they were watching it but on May 14th it ruptured and my mom laid in a coma never to wake up. We removed her life support on May 22nd and 4 hours later she passed away. I am heartbroken over the loss of my mom, my best friend and my rock! I miss her and wish that I could have helped her. More funding needs to be provided for research!! I am told I am at risk because of the family history of aneurysms and I am scared!
Jun 6th, 2018
D. M. from Buffalo, NY writes:
Quotation mark icon
Please increase the funding for research, too many people are dying and are suffering.
Jun 3rd, 2018
Jeanne A. from San Marcos, CA writes:
Quotation mark icon
We need your support
May 30th, 2018
Amy S. from Cedar Hill, TX writes:
Quotation mark icon
I am a brain aneurysm survivor. This cause hits home for me. I almost lost my life but due to magnificent neurology teams, my life was saved. Brain aneurysm awareness is much needed because it often goes undetected. Please see this as a serious issue. Our lives depend on it!
May 22nd, 2018
Melanie T. from Dolton, IL writes:
Quotation mark icon
Survivor of an AVM which contained 5 aneurysms. Not sure which one ruptured but I survived. I have been able to facilitate support groups for others like myself. More research is needed. More widespread screens and scans are needed. Rehabilitation after the first year also may help neurological patients with longer term quality of life.