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Tell Congress: Put Brain Aneurysm Awareness On The Map

You Can Help Declare September as National Brain Aneurysm Awareness Month

Shirley Dudek Demmer was a loving wife and the proud mother of two sons and a daughter. Just 54 years old, she was focused on planning for the future with her husband and children. She tirelessly dedicated her life to the family she cherished, the home that she treasured, and the community that she loved. This all changed on November 12, 2007.

In the midst of preparing dinner one night, Shirley collapsed suddenly. Her husband called an ambulance and she was rushed to a nearby hospital where doctors broke the news to her stunned family that a brain aneurysm rupture had caused catastrophic damage. Surgeons tried to repair the damage, but were unable to save her.

Shirley's family was shocked by her sudden death that came without warning. Shirley exercised regularly and was in seemingly perfect health. Her husband said she had had every medical test that was recommended and kept meticulous notes of the results.

Shirley was a person of extreme warmth and caring. Throughout her life, she was dedicated to family, faith and community. Her philanthropic efforts, particularly in the area of women's rights and violence against women, had a remarkable effect on everyone whose lives she touched. Her three children were never able to say goodbye. Her husband, her family and her friends were left trying to make sense of their loss. They lost a mother, a wife, a good friend, and an important member of her town’s community.

Every year over 30,000 families in the U.S. experience the unspeakable tragedy caused by a ruptured brain aneurysm.  About 40% of those experiencing a ruptured brain aneurysm will die. Those that survive often face significant challenges, greatly impacting their lives and the lives of their families.
 
Families like Shirley's are asking you for your support by sending a message to your representatives in Congress by signing this petition. 

1 in 50 people will develop a brain aneurysm. If a brain aneurysm is diagnosed early with proper screening, it can be treated before it ruptures.  Lives can be saved if people know the risks, the signs, and when to get help.

It is critical that you help raise awareness of brain aneurysms, including methods of early detection and treatment.

Your support of H. Res. 667 introduced by Representative Tiberi and Representative Neal would have a tremendous impact and would be much appreciated by those whose lives have been impacted by brain aneurysms, as well as a big thank you to the Senate for passing resolution S. Res. 438, sponsored by Senator Markey and Senator Ayotte.

The Brain Aneurysm Foundation asks you to please sign below to support H. Res. 667 and to thank your Senators for passing S. Res. 438 to make September National Brain Aneurysm Awareness Month. 

 

Public Comments
Sep 11th, 2016
Ann C. from Elmira, NY signed.
Sep 6th, 2016
Ileana M. from Bronx, NY writes:
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Iam a ruperted Aneursym survivor thriving day by day seeking help and awareness not only for me but for many other survivors please help in this life changing battle please keep us in mind thank you .
Sep 5th, 2016
Someone from Rome, NY signed.
Sep 5th, 2016
Someone from Taberg, NY signed.
Sep 5th, 2016
Kathy S. from Hawesville, KY writes:
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Lost my beautiful 63 year old mothers 13 years ago to a brain aneurysm.
Sep 5th, 2016
Louise T. from Louisville, KY writes:
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Just lost a nurse coworker last week. Please help.
Sep 5th, 2016
Louise T. from Louisville, KY signed.
Sep 5th, 2016
Louise T. from Louisville, KY signed.
Sep 5th, 2016
Stephanie C. from Elizabeth, IN writes:
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I just lost a beautiful friend... only 43 years old. Wife, mother of 2, pediatric nurse, epitome of good health! I'm rallying in memory of Nancy Hughes!
Sep 5th, 2016
Stacy T. from Louisville, KY writes:
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I'll be a 12 year brain aneurysm survivor this November!
Sep 5th, 2016
Ann h. from Louisville, KY signed.
Sep 4th, 2016
Sherry H. from Jeffersonville, IN signed.
Aug 17th, 2016
Yanira H. from Hazleton, PA signed.
Aug 17th, 2016
Lissette D. from Jersey City, NJ signed.
Aug 17th, 2016
Yarisa R. from Bronx, NY signed.
Aug 16th, 2016
Francine M. from Tolleson, AZ writes:
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Thanks for passing S. Res. 438 and take a moment to review my new book.
Aug 16th, 2016
Francine M. from Tolleson, AZ writes:
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Biography Of A Brain Aneurysm Patient And The Dark Side Of Medicine Author, Francine A. Merkel offers a new paperback version of her novel, My Brain Aneurysm. It puts forward, inspiration to rise above depression, frustration and anger. PHOENIX - Aug. 4, 2016 - PRLog -- Francine A. Merkel has published, My Brain Aneurysm, a 242 page autobiography including medical and non-medical analysis plus detailed pictures. It's based on Merkel's life shortly after she moved to Arizona, from 2006 to 2016. Understanding her struggles to get immediate treatment for a burst aneurysm, can make the difference between a quick recovery or death. So...hold tight, ride along with her. You'll discover an endless journey to hospitals, clinics, emergency rooms, doctors, nurses, therapists, psychologists, etc. Although she found most of her experiences with medical providers, positive, in her opinion, a few exhibited incompetence, hostility and deception. Francine has described each of her negative encounters in detail throughout this book. You or your champion must be aware and take immediate corrective action. Consider this autobiography as a guide to negotiating the overwhelming maze of medical providers and avoiding their pitfalls. PREORDERS: For a limited time, My Brain Aneurysm can be pre-ordered at $6.99 (tax and shipping extra) until August 31, 2016. Francine's story chronicles a life, medically similar to other people, who have succumbed to a brain aneurysm. Take for instance, [Neil Young], award winning musician, who at 59, (Francine at 55) ended up x-rayed and slated for brain surgery in 2005 (Francine in 2006). [Neil Young] endured brain surgery, but after the operation, had to survive life threatening femoral artery bleeding. [Young] struggles through numerous set-backs every day but continues to improve. Contact [Neil Young] on Facebook at: https://www.facebook.com/NeilYoung About Francine A. Merkel She was born in Appleton, WI. Working for a Fortune 500 telecommunication company near Chicago, she managed numerous employees in the processing of communication equipment. As Vice President of Sales for a Chicago area sales and marketing firm, she helped take the company international. Later, she ran for and won a seat on the Bloomfield Township Board in South East Wisconsin. Francine now resides in Phoenix, AZ, where she serves as Vice President of Accounting, for Allan Ann Media, LLC. Contact Francine A. Merkel allan.ann.media@outlook.com
Aug 16th, 2016
Tonya R. from Hudsonville, MI writes:
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I am a survivor of four large brain aneurysms!! People need to be aware
Aug 15th, 2016
Leizel C. from Los Angeles, CA signed.
Aug 15th, 2016
Aristotle S. from San Marcos, TX signed.
Aug 15th, 2016
Alex S. from San Marcos, TX writes:
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My mother passed away from a ruptured brain aneurysm my freshman year of college. I had to take care of my family during that time. It needs to be heard and needs to be known.
Aug 11th, 2016
Pauline K. from Honey Brook, PA signed.
Aug 11th, 2016
Pauline K. from Honey Brook, PA signed.
Aug 11th, 2016
Pauline K. from Honey Brook, PA writes:
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this is very much needed
Aug 11th, 2016
Jennifer B. from Smithville, TN signed.
Aug 11th, 2016
Kristin G. from Mcminnville, TN signed.
Aug 11th, 2016
Ashli C. from Smithville, TN signed.
Aug 11th, 2016
Allyson J. from Smithville, TN writes:
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In honor of my Grammy who is a survivor of a ruptured aneursym! She actually had 2-3 more come up and the doctors found them in time. Praise the Lord! Here is for being able to live alone the past 2 years, with only suffering from sligh vision loss and damage to sort term memory! All thanks goes to God!
Aug 11th, 2016
Diane K. from Mcminnville, TN writes:
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In honor of all those afflicted.
Aug 11th, 2016
vicky w. from Morrison, TN signed.
Aug 10th, 2016
Shonda W. from Morrison, TN signed.
Aug 10th, 2016
Vicki P. from Mcminnville, TN signed.
Aug 10th, 2016
Holly H. from Mcminnville, TN signed.
Aug 10th, 2016
Sonja W. from Mcminnville, TN signed.
Aug 10th, 2016
Chris K. from Mcminnville, TN signed.
Aug 10th, 2016
Someone from Mcminnville, TN writes:
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Had three myself. Two surgeries and 13 years later still going strong and about to celebrate my 50th birthday. More screening is needed to save lives.
Aug 10th, 2016
Erin S. from Temple, GA writes:
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I lost my husband in January of this year to a brain aneurysm. He was only 26 years old. He left behind an 11 month old son who now, will never know his father.
Aug 10th, 2016
Teresa L. from Murfreesboro, TN signed.
Aug 10th, 2016
Ian M. from Pruden, TN signed.
Aug 10th, 2016
Izet B. from Montgomery Village, MD signed.