Share:

Support Brain Aneurysm Research Funding

Cosponsor H.R. 1648

The Ellie Helton, Lisa Colagrossi, Teresa Anne Lawrence, and Jennifer Sedney Focused Research Act (Ellie’s Law)

While brain aneurysms are surprisingly common, federal funding for research in this area is almost non-existent. An estimated 6 million people in the United States have an unruptured brain aneurysm, and each year an estimated 30,000 people in the United States will suffer a rupture. Ruptured brain aneurysms are fatal in 40% of the cases, with 66% of survivors suffering permanent neurological damage. The combined overall lost wages of survivors of ruptured brain aneurysms and their caretakers are approximately $138,000,000 per year. Despite these startling statistics, the federal government spends only about $5 million per year on brain aneurysm research, or 83 cents per American afflicted with the disease each year.

Ellie’s Law aims to reduce this gap, by authorizing an additional $5 million each fiscal year, for five years, to the National Institute of Neurological Disorders and Stroke.

 

Post Public Comments

Public Comments (39)
May 10th, 2018
Rachael B. from Lexington, KY writes:
Quotation mark icon
My mom passed away just this past January from a brain aneurysm. She was a healthy and happy 66 year old woman. I’d love to see more research done to help detect them earlier or prevent them all together.
May 9th, 2018
Laura H. from Frederick, MD writes:
Quotation mark icon
from a SURVIVOR of 1 Brain Aneurysm Rupture in addition to 3 more found through the recovery of the 1st rupture
May 7th, 2018
Deborah D. D. from San Francisco, CA writes:
Quotation mark icon
For a medical condition which affects such a substantial percentage of the American population, it is absolutely essential that sufficient (not token) federal funds be directed toward research on, and identification of, brain aneurism. Please support Ellie's Law as an initial effort toward properly funding this critical research, via the National Institute of Neurological Disorders and Stroke (NINDS).
May 7th, 2018
Rosa L. from New York, NY signed.
May 6th, 2018
Someone from New York, NY signed.
May 6th, 2018
Maria L. from Scarsdale, NY signed.
May 6th, 2018
Molly C. from Brooklyn, NY writes:
Quotation mark icon
I cannot believe that such a common affliction with such a high fatality rate is so supremely underfunded. Please please pass Ellie's Law to fund additional research that will make a real impact on so many families' lives.
May 6th, 2018
Barbara W. from New York, NY signed.
May 6th, 2018
Grace M. from Philadelphia, PA signed.
May 6th, 2018
Nathalie T. from Bronx, NY writes:
Quotation mark icon
I support federal funding for the research and study of brain aneurysms. We need to stop investing our money/ the taxpayers money into things that will affect us in the run long. Let’s invest into making a healthier and powerful U.S.